Publication
Quality of life of the caregivers of people with aphasia. A systematic review.
| dc.contributor.author | Patrício, Brígida | |
| dc.contributor.author | Jesus, Luis | |
| dc.contributor.author | Cruice, Madeline | |
| dc.date.accessioned | 2013-07-03T11:32:03Z | |
| dc.date.available | 2013-07-03T11:32:03Z | |
| dc.date.issued | 2013 | |
| dc.description.abstract | Purpose: Systematic review to identify the factors associated to the quality of life (QOL) of the caregivers of people with aphasia (PWA). Methods: Studies were searched using Medline, Pubmed, Cochrane Library, CINAHL, PsycINFO and Web of Science databases. Peer-reviewed papers that studied the QOL of PWA’s caregivers or the consequences of aphasia in caregivers’ life were included. Findings were extracted from the studies that met the inclusion criteria. Results: No data is available reporting particularly the QOL of PWA caregivers’ or their QOL predictors. Nevertheless, it was possible to extract aspects related to QOL from the studies that report the consequences of aphasia, and life changes in PWA’s caregivers. Nine (9) studies including PWA’s caregivers were found, but only 5 reported data separately on them. Methodological heterogeneity impedes cross-study comparisons, although some considerations can be made. PWA’s caregivers reported life changes such as: loss of freedom; social isolation; new responsibilities; anxiety; emotional loneliness; need for support and respite. Conclusions: Changes in social relationships, in emotional status, increased burden and need for support and respite were experienced by PWA’s caregivers. Stroke QOL studies need to include PWA caregivers’ and report separately on them. Further research is needed in this area in order to determine their QOL predictors and identify what interventions and referrals better suit their needs. | por |
| dc.identifier.uri | http://hdl.handle.net/10400.22/1727 | |
| dc.language.iso | eng | por |
| dc.peerreviewed | yes | por |
| dc.publisher | Instituto Politécnico do Porto. Escola Superior de Tecnologia da Saúde do Porto | por |
| dc.publisher | Instituto de Engenharia Electrónica e Telemática de Aveiro | |
| dc.publisher | Escola Superior de Saúde da Universidade de Aveiro | |
| dc.publisher | School of Health Sciences | |
| dc.subject | Quality of life | por |
| dc.subject | Caregivers | por |
| dc.subject | Aphasia | por |
| dc.subject | Consequences | por |
| dc.title | Quality of life of the caregivers of people with aphasia. A systematic review. | por |
| dc.type | journal article | |
| dspace.entity.type | Publication | |
| person.familyName | Patrício | |
| person.givenName | Brígida | |
| person.identifier.ciencia-id | 601F-F13B-D0F1 | |
| person.identifier.orcid | 0000-0002-2619-470X | |
| rcaap.rights | openAccess | por |
| rcaap.type | article | por |
| relation.isAuthorOfPublication | a7324cec-3894-4c04-8364-b2cf95b65412 | |
| relation.isAuthorOfPublication.latestForDiscovery | a7324cec-3894-4c04-8364-b2cf95b65412 |