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Classifying Functioning of Children and Adolescents with Intellectual Disability: The Utility of the International Classification of Functioning, Disability and Health for Children and Youth

2017Journal article Open access
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dc.contributor.authorVale, Maria do Carmo
dc.contributor.authorPereira-da-Silva, Luis
dc.contributor.authorPimentel, Maria João
dc.contributor.authorMarques, Teresa Nunes
dc.contributor.authorRodrigues, Helena
dc.contributor.authorCunha, Gilda
dc.contributor.authorMachado, Maria do Céu
dc.contributor.authorSanches-Ferreira, Manuela
dc.contributor.authorSimeonsson, Rune J.
dc.date.accessioned2019-01-08T12:20:40Z
dc.date.available2019-01-08T12:20:40Z
dc.date.issued2017
dc.description.abstractObservational cross-sectional study carried out in a pediatric neurodevelopment unit of a tertiary-care hospital. A sample of 355 children with median ((min.–max.) 1.0–17.3) years with intellectual disability (30.4% borderline, 43.1% mild, 19.7% moderate, 5.1% severe, and 1.7% profound disability) was seen over a period of 3 years. Based on clinical observation and psychological evaluation, a neurodevelopmental pediatrician selected ICF-CY body functions codes, and respective qualifiers, to effectively describe functioning of children. Based on evaluation reports, a psychologist and a special educator assigned the previously chosen ICF-CY body functions codes to 139 and 67 children, respectively. Inter-rater agreement was estimated using simple and weighted Cohen’s kappa coefficients and Gwet’s AC1 statistic and Gwet’s weighted kappa coefficient statistic. A set of eight ICF-CY codes was identified as efficiently describing impairments of body functions of children with intellectual disability: global mental functions b117 and b122; specific mental functions b147, b163, b164, and b167; and voice and speech functions b320 and b330. Results indicate a correspondence between the level of severity of qualifiers assigned to ICF-CY codes and the level of intellectual disability. Inter-rater agreement was variable among raters, with the best agreements found for qualifying intellectual functions (b117) and psychomotor functions (b122). A profile of eight ICF-CY codes effectively describes functioning of children with intellectual disability, providing an alternative to medically based classification, based on diagnoses with functionally based classification of children’s characteristics. The findings contribute to define a comprehensive set of codes to reliably record individual differences of functioning in this populationpt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.doi10.1111/jppi.12199pt_PT
dc.identifier.urihttp://hdl.handle.net/10400.22/12594
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.subjectDisability and Health for Children and Youth (ICF-CY)pt_PT
dc.subjectInternational Classification of Functioningpt_PT
dc.subjectintellectual disabilitiespt_PT
dc.subjectinterobserver agreementpt_PT
dc.titleClassifying Functioning of Children and Adolescents with Intellectual Disability: The Utility of the International Classification of Functioning, Disability and Health for Children and Youthpt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.endPage292pt_PT
oaire.citation.issue4pt_PT
oaire.citation.startPage285pt_PT
oaire.citation.titleJournal of Policy and Practice in Intellectual Disabilitiespt_PT
oaire.citation.volume14pt_PT
person.familyNamePereira-da-Silva
person.familyNameSanches-Ferreira
person.givenNameLuis
person.givenNameManuela
person.identifier.ciencia-id9119-8B76-B723
person.identifier.orcid0000-0001-7069-6451
person.identifier.orcid0000-0002-4693-3928
person.identifier.scopus-author-id7006744753
person.identifier.scopus-author-id55555788000
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
relation.isAuthorOfPublication7c01a0aa-6d6f-4440-9954-67503d670ca8
relation.isAuthorOfPublication2a6f8b66-47a3-4251-8a17-5a330367443a
relation.isAuthorOfPublication.latestForDiscovery7c01a0aa-6d6f-4440-9954-67503d670ca8

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