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- Influência da comunicação na vida dos cuidadores de pessoas com afasiaPublication . Silva, Fátima; Patrício, BrígidaEste estudo tem como objectivo verificar se os cuidadores informais de pessoas com afasia consideram pertinente a sua participação no processo de habilitação/reabilitação do seu familiar, em terapia da fala, tendo em conta o impacto da afasia na sua vida. Foram entrevistados 7 cuidadores. Verificou-se que a sua qualidade de vida diminuiu, que houve alterações nos padrões de comunicação, nos papéis desempenhados e nos seus relacionamentos. É atribuída importância à terapia da fala na melhoria das competências comunicativas dos familiares e na relação entre ambos, considerando a sua participação pertinente, apesar de nem sempre conseguirem acompanhar o familiar às sessões.
- Clinical Education - a fundamental curricular unit for all health practitionersPublication . Patrício, Brígida; Magina, Eugénia; Nunes, Helena; Faria, Paula Cristina; Araújo, André; Cunha, Maria JoãoClinical education is recognized as being crucial for the training of health professionals. This subject is debated amongst teachers, students and professionals. Besides the clinical and research skills, we look for other competencies such as oratory, creative thinking or leadership. We present the results of a study with 4th graders. It’s a exploratory study; the main purpose was to evaluate the outcomes of a unit of clinical education prepared according a new set of competencies and methodologies. The competencies were seen as valuable. Organization, leading or supporting a colleague, rethinking a program to serve client and family are equally important.
- RELEASE: a protocol for a systematic review based, individual participant data, meta- and network meta-analysis, of complex speech-language therapy interventions for stroke-related aphasiaPublication . Brady, Marian C.; Patrício, BrígidaSpeech and language therapy (SLT) benefits people with aphasia following stroke. Group level summary statistics from randomised controlled trials hinder exploration of highly complex SLT interventions and a clinically relevant heterogeneous population. Creating a database of individual participant data (IPD) for people with aphasia aims to allow exploration of individual and therapy-related predictors of recovery and prognosis. To explore the contribution that individual participant char acteristics (including stroke and aphasia profiles) and SLT intervention components make to language recovery following stroke. Methods and procedures: We will identify eligible IPD datasets (including randomised controlled trials, non-randomised comparison studies, observational studies and registries) and invite their contribution to the database. Where possible, we will use meta and network meta-analysis to explore language performance after stroke and predictors of recovery as it relates to participants who had no SLT, historical SLT or SLT in the primary research study. We will also examine the components of effective SLT interventions. Outcomes include changes in measures of functional communication, overall severity of language impairment, auditory comprehension, spoken language (including naming), read ing and writing from baseline. Data captured on assessment tools will be collated and transformed to a standardised measure for each of the outcome domains. Our planned systematic-review-based IPD meta- and network meta-analysis is a large scale, international, multidisciplin ary and methodologically complex endeavour. It will enable hypotheses to be generated and tested to optimise and inform development of interventions for people with aphasia after stroke. The protocol has been registered at the International Prospective Register of Systematic Reviews (PROSPERO; registration number: CRD42018110947).
- Quality of life predictors and normative dataPublication . Patrício, Brígida; Jesus, Luis; Cruice, Madeline; Hall, AndreiaPurpose: Identify predictors and normative data for quality of life (QOL) in a sample of Portuguese adults from general population Methods: A cross-sectional correlational study was undertaken with two hundred and fifty-five (N=255) individuals from Portuguese general population (mean age 43yrs, range 25-84yrs; 148 females, 107 males). Participants completed the European Portuguese version of the World Health Organization Quality of Life short-form instrument (WHOQOL-Bref) and the European Portuguese version of the Center for Epidemiologic Studies Depression Scale (CES-D). Demographic information was also collected. Results: Portuguese adults reported their QOL as good. The physical, psychological and environmental domains predicted 44% of the variance of QOL. The strongest predictor was the physical domain and the weakest was social relationships. Age, educational level, socioeconomic status and emotional status were significantly correlated with QOL and explained 25% of the variance of QOL. The strongest predictor of QOL was emotional status followed by education and age. QOL was significantly different according to: marital status; living place (mainland or islands); type of cohabitants; occupation; health. Conclusions: The sample of adults from general Portuguese population reported high levels of QOL. The life domain that better explained QOL was the physical domain. Among other variables, emotional status best predicted QOL. Further variables influenced overall QOL. These findings inform our understanding on adults from Portuguese general population QOL
- Validade e fiabilidade da versão portuguesa do Stroke Aphasic Depression Questionnaire-21Publication . Patrício, BrígidaO objectivo deste estudo é determinar as propriedades psicométricas da versão portuguesa do Stroke Aphasic Depression Questionnaire-21 (SADQ-21). Envolveu 120 sujeitos, 33 dos quais com afasia. Os resultados demonstraram que o SADQ-21 revela uma consistência interna muito elevada (α=0,87). A validade de construção identificou cinco domínios. A variância total explicada pelos factores foi elevada (65,85%). A correlação entre a medida de ouro e o SADQ-21 é estatisticamente significativa (p<0,05). Os indivíduos com afasia estão significativamente mais deprimidos que os sem afasia (p=0,0001). Conclui-se que o SADQ-21 é um instrumento adequado para a avaliação da sintomatologia depressiva em pessoas com afasia.
- Quality of life of the caregivers of people with aphasia. A systematic review.Publication . Patrício, Brígida; Jesus, Luis; Cruice, MadelinePurpose: Systematic review to identify the factors associated to the quality of life (QOL) of the caregivers of people with aphasia (PWA). Methods: Studies were searched using Medline, Pubmed, Cochrane Library, CINAHL, PsycINFO and Web of Science databases. Peer-reviewed papers that studied the QOL of PWA’s caregivers or the consequences of aphasia in caregivers’ life were included. Findings were extracted from the studies that met the inclusion criteria. Results: No data is available reporting particularly the QOL of PWA caregivers’ or their QOL predictors. Nevertheless, it was possible to extract aspects related to QOL from the studies that report the consequences of aphasia, and life changes in PWA’s caregivers. Nine (9) studies including PWA’s caregivers were found, but only 5 reported data separately on them. Methodological heterogeneity impedes cross-study comparisons, although some considerations can be made. PWA’s caregivers reported life changes such as: loss of freedom; social isolation; new responsibilities; anxiety; emotional loneliness; need for support and respite. Conclusions: Changes in social relationships, in emotional status, increased burden and need for support and respite were experienced by PWA’s caregivers. Stroke QOL studies need to include PWA caregivers’ and report separately on them. Further research is needed in this area in order to determine their QOL predictors and identify what interventions and referrals better suit their needs.
- Mismatch Negativity and the N2B Component Elicited By Pure Tones and Speech Sounds in Anomic Aphasia: a Case StudyPublication . Tomé, David; Patrício, Brígida; Manchaiah, Vinaya; Barbosa, Fernando; Teixeira, João MarquesThe auditory processing impairments frequently observed in aphasia are being slowly clarified by using eventrelated potentials (ERPs), a method that allows brain processes to be observed at high temporal resolution. Mismatch negativity (MMN) and the N2b amplitude reflect aspects of echoic memory, attention, and phonological representation. This study evaluates the auditory processing of speech and pure tones in an anomic aphasia subject 6 years after a stroke, and investigates whether ERPs can detect possible neurophysiologic sequelae after recovery and rehabilitation.
- Returning to active life after aphasia rehabilitationPublication . Patrício, Brígida; Santos, Maria JoséAphasia is an acquired language disability caused by brain damage, usually stroke, that affects the person’s ability to communicate with others since it may compromise speaking, understanding, reading, and writing. Aphasia affects the biopsychosocial integrity of the individuals compromising their social relationships (SR), their participation in activities, their emotional status and their QOL. Usually people with aphasia have difficulties in returning to previous activities and roles, specially returning to work.
- People’s with aphasia QOL assessment by speech and language therapists in PortugalPublication . Gonçalves, Ricardo; Patrício, BrígidaPeople with aphasia have language and communication difficulties that negatively impact in their quality of life. The aim of this study is to investigate if quality of life (QOL) is assessed by Portuguese speech and language therapists (SLT) when working with people with aphasia (PWA) and to determine which areas of QOL are being taken into account in the assessment and intervention carried out by SLT in patients with aphasia in Portugal.
- Limitations of the social relationships domain of WHOQOL-BrefPublication . Patrício, Brígida; Jesus, L.M.T.; Cruice, M.; Hall, A.The aim of this study is to assess the suitability of the social relationships (SR) domain of the WHOQOL-Bref by comparing it with the WHOQOL-100 SR domain. SR are an essential consideration in clinical rehabilitation after stroke, and especially for those who have aphasia (language impairment).