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Utilising a systematic review-based approach to create a database of individual participant data for meta- and network meta-analyses: the RELEASE database of aphasia after stroke

2021-10-08Journal article Restricted access
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dc.contributor.authorWilliams, Louise R.
dc.contributor.authorAli, Myzoon
dc.contributor.authorVandenBerg, Kathryn
dc.contributor.authorWilliams, Linda J.
dc.contributor.authorAbo, Masahiro
dc.contributor.authorBecker, Frank
dc.contributor.authorBowen, Audrey
dc.contributor.authorBrandenburg, Caitlin
dc.contributor.authorBreitenstein, Caterina
dc.contributor.authorBruehl, Stefanie
dc.contributor.authorCopland, David A.
dc.contributor.authorCranfill, Tamara B.
dc.contributor.authorPietro-Bachmann, Marie Di
dc.contributor.authorEnderby, Pamela
dc.contributor.authorFillingham, Joanne
dc.contributor.authorGalli, Federica Lucia
dc.contributor.authorGandolfi, Marialuisa
dc.contributor.authorGlize, Bertrand
dc.contributor.authorGodecke, Erin
dc.contributor.authorHawkins, Neil
dc.contributor.authorHilari, Katerina
dc.contributor.authorHinckley, Jacqueline
dc.contributor.authorHorton, Simon
dc.contributor.authorHoward, David
dc.contributor.authorJaecks, Petra
dc.contributor.authorJefferies, Elizabeth
dc.contributor.authorJesus, Luis MT
dc.contributor.authorKambanaros, Maria
dc.contributor.authorKang, Eun Kyoung
dc.contributor.authorKhedr, Eman M.
dc.contributor.authorKong, Anthony Pak-Hin
dc.contributor.authorKukkonen, Tarja
dc.contributor.authorLaganaro, Marina
dc.contributor.authorRalph, Matthew A Lambon
dc.contributor.authorLaska, Ann Charlotte
dc.contributor.authorLeemann, Béatrice
dc.contributor.authorLeff, Alexander P.
dc.contributor.authorLima, Roxele Ribeiro
dc.contributor.authorLorenz, Antje
dc.contributor.authorMacWhinney, Brian
dc.contributor.authorMarshall, Rebecca Shisler
dc.contributor.authorMattioli, Flavia
dc.contributor.authorMaviş, İlknur
dc.contributor.authorMeinzer, Marcus
dc.contributor.authorNilipour, Reza
dc.contributor.authorNoé, Enrique
dc.contributor.authorPaik, Nam-Jong
dc.contributor.authorPalmer, Rebecca
dc.contributor.authorIlias, Papathanasiou
dc.contributor.authorPatrício, Brígida
dc.contributor.authorMartins, Isabel Pavão
dc.contributor.authorPrice, Cathy
dc.contributor.authorJakovac, Tatjana Prizl
dc.contributor.authorRochon, Elizabeth
dc.contributor.authorRose, Miranda L.
dc.contributor.authorRosso, Charlotte
dc.contributor.authorRubi-Fessen, Ilona
dc.contributor.authorRuiter, Marina B.
dc.contributor.authorSnell, Claerwen
dc.contributor.authorStahl, Benjamin
dc.contributor.authorSzaflarski, Jerzy P.
dc.contributor.authorThomas, Shirley A.
dc.contributor.authorSandt-Koenderman, Mieke Van De
dc.contributor.authorMeulen, Ineke Van Der
dc.contributor.authorVisch-Brink, Evy
dc.contributor.authorWorrall, Linda
dc.contributor.authorWright, Heather Harris
dc.contributor.authorBrady, Marian C.
dc.date.accessioned2021-12-14T10:41:38Z
dc.date.available2021-12-14T10:41:38Z
dc.date.issued2021-10-08
dc.description.abstractCollation of aphasia research data across settings, countries and study designs using big data principles will support analyses across different language modalities, levels of impairment, and therapy interventions in this heterogeneous population. Big data approaches in aphasia research may support vital analyses, which are unachievable within individual trial datasets. However, we lack insight into the requirements for a systematically created database, the feasibility and challenges and potential utility of the type of data collated. To report the development, preparation and establishment of an internationally agreed aphasia after stroke research database of individual participant data (IPD) to facilitate planned aphasia research analyses. Data were collated by systematically identifying existing, eligible studies in any language (≥10 IPD, data on time since stroke, and language performance) and included sourcing from relevant aphasia research networks. We invited electronic contributions and also extracted IPD from the public domain. Data were assessed for completeness, validity of value-ranges within variables, and described according to pre-defined categories of demographic data, therapy descriptions, and language domain measurements. We cleaned, clarified, imputed and standardised relevant data in collaboration with the original study investigators. We presented participant, language, stroke, and therapy data characteristics of the final database using summary statistics. From 5256 screened records, 698 datasets were potentially eligible for inclusion; 174 datasets (5928 IPD) from 28 countries were included, 47/174 RCT datasets (1778 IPD) and 91/174 (2834 IPD) included a speech and language therapy (SLT) intervention. Participants’ median age was 63 years (interquartile range [53, 72]), 3407 (61.4%) were male and median recruitment time was 321 days (IQR 30, 1156) after stroke. IPD were available for aphasia severity or ability overall (n = 2699; 80 datasets), naming (n = 2886; 75 datasets), auditory comprehension (n = 2750; 71 datasets), functional communication (n = 1591; 29 datasets), reading (n = 770; 12 datasets) and writing (n = 724; 13 datasets). Information on SLT interventions were described by theoretical approach, therapy target, mode of delivery, setting and provider. Therapy regimen was described according to intensity (1882 IPD; 60 datasets), frequency (2057 IPD; 66 datasets), duration (1960 IPD; 64 datasets) and dosage (1978 IPD; 62 datasets). Our international IPD archive demonstrates the application of big data principles in the context of aphasia research; our rigorous methodology for data acquisition and cleaning can serve as a template for the establishment of similar databases in other research areas.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationWilliams, L. R., Ali, M., VandenBerg, K., Williams, L. J., Abo, M., Becker, F., Bowen, A., Brandenburg, C., Breitenstein, C., Bruehl, S., Copland, D. A., Cranfill, T. B., Di Pietro-Bachmann, M., Enderby, P., Fillingham, J., Galli, F. L., Gandolfi, M., Glize, B., Godecke, E., Hawkins, N., Hilari, K., Hinckley, J., Horton, S., Howard, D., Jaecks, P., Jefferies, E., Jesus, L. M. T., Kambanaros, M., Kyoung Kang, E., Khedr, E. M., Kong, A. P.-H., Kukkonen, T., Laganaro, M., Lambon Ralph, M. A., Laska, A. C., Leemann, B., Leff, A. P., Ribeiro Lima, R., Lorenz, A., MacWhinney, B., Marshall, R. S., Mattioli, F., Maviş, İ., Meinzer, M., Nilipour, R., Noé, E., Paik, N.-J., Palmer, R., Papathanasiou, I., Patricio, B. F., Pavão Martins, I., Price, C., Prizl Jakovac, T., Rochon, E., Rose, M. L., Rosso, C., Rubi-Fessen, I., Ruiter, M. B., Snell, C., Stahl, B., Szaflarski, J. P., Thomas, S. A., Van De Sandt-Koenderman, M., Van Der Meulen, I., Visch-Brink, E., Worrall, L., Wright, H. H., & Brady, M. C. (2021). Utilising a systematic review-based approach to create a database of individual participant data for meta- and network meta-analyses: the RELEASE database of aphasia after stroke. Aphasiology, 1-21. https://doi.org/10.1080/02687038.2021.1897081pt_PT
dc.identifier.doi10.1080/02687038.2021.1897081pt_PT
dc.identifier.eissn1464-5041
dc.identifier.urihttp://hdl.handle.net/10400.22/19065
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherTaylor & Francispt_PT
dc.relation.publisherversionhttps://www.tandfonline.com/doi/pdf/10.1080/02687038.2021.1897081pt_PT
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/pt_PT
dc.subjectStrokept_PT
dc.subjectAphasiapt_PT
dc.subjectIndividual participant datapt_PT
dc.subjectSpeech and language therapypt_PT
dc.subjectRehabilitation reporting standardspt_PT
dc.titleUtilising a systematic review-based approach to create a database of individual participant data for meta- and network meta-analyses: the RELEASE database of aphasia after strokept_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.titleAphasiologypt_PT
person.familyNamePatrício
person.givenNameBrígida
person.identifier.ciencia-id601F-F13B-D0F1
person.identifier.orcid0000-0002-2619-470X
rcaap.rightsclosedAccesspt_PT
rcaap.typearticlept_PT
relation.isAuthorOfPublicationa7324cec-3894-4c04-8364-b2cf95b65412
relation.isAuthorOfPublication.latestForDiscoverya7324cec-3894-4c04-8364-b2cf95b65412

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